Yearly Archives: 2017

/2017
21 12, 2017

INFECT Meeting in Stockholm

2017-12-21T11:01:21+00:00 December 21st, 2017|Awareness, Event|

I was honoured to represent the Lee Spark Foundation at the 5th annual INFECT meeting in Stockholm at the beginning of December. It was fantastic to meet and work with such an excellent group of people, all working towards the same goal - "to advance our understanding of the pathophysiological mechanisms, prognosis, and diagnosis of [...]

28 11, 2017

29th Nov – 1st Dec is the 5th Annual INFECT Meeting

2017-11-28T10:36:47+00:00 November 28th, 2017|Latest News|

This week sees the 5th annual INFECT meeting, where our co-ordinator Wayne will be attending on behalf of The Lee Spark Foundation. As someone that has been through necrotising fasciitis, Wayne is aware of the need for medical research and will be able to add valuable insight to this project. What is INFECT? The overall [...]

24 11, 2017

Looking For Work After NF? Try This . .

2017-11-24T09:26:47+00:00 November 24th, 2017|Latest News|

We all know that getting back to work after a serious illness such as NF can be daunting. So many questions . . . How will I cope with full-time work and stress? Do I tell them about my illness? What if I need support? So, we've been on the look-out for good employers with [...]

10 11, 2017

NF causes new mum to become quadruple amputee

2018-01-26T10:57:13+00:00 November 10th, 2017|Awareness, Latest News|

When new mother Lindsey Hubley returned to the hospital with severe stomach pains a few days after giving birth, she was told it was just constipation and sent home. Hours later, though, the 33-year-old Canadian was rushed into emergency surgery and eventually diagnosed with necrotizing fasciitis—also known as flesh-eating bacteria. Hubley was suffering from septic [...]

3 11, 2017

Working with INFECT

2017-11-03T22:13:08+00:00 November 3rd, 2017|Latest News|

We are proud to be a partner of INFECT. This EU project aims at applying a systems medicine approach to elucidate the complex host and pathogen signatures that dictate severe bacterial soft tissue infections. INFECT aims to substantially contribute to the systems understanding of the pathophysiology of highly lethal destructive soft tissue infections, i.e. necrotizing [...]

31 10, 2017

Fundraising!

2017-10-31T12:46:49+00:00 October 31st, 2017|Awareness, Fundraising|

A huge thank you and well done to Tim Ogdon, who has raised £1456.25 for our charity! Tim showed superhuman strength by completing 3 half-marathons this year in memory of his brother Jonathan, who tragically took his life after his battle with NF. Another terrible reminder of why we must continue to raise awareness and [...]

14 10, 2017

Science Daily discuss how 2 Group A Strep Genes link to NF

2017-10-14T12:02:14+00:00 October 14th, 2017|Awareness|

Group A Streptococcus bacteria cause a variety of illnesses that range from mild nuisances like strep throat to life-threatening conditions including pneumonia, toxic shock syndrome and the flesh-eating disease formally known as necrotizing fasciitis. The life-threatening infections occur when the bacteria spread underneath the surface of the skin or throat and invade the underlying soft [...]

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