26 01, 2018

Texas woman loses life to NF after eating raw oysters

2018-01-26T11:16:03+00:00 January 26th, 2018|Awareness, Latest News|

A Texan woman has died after contracting a flesh-eating bacteria after eating raw oysters on a trip to the the Louisiana coast. Jeanette LeBlanc died after a three-week battle with vibriosis, an illness typically caused by eating raw seafood. After shucking and eating roughly two dozen raw oysters with her wife and a friend, LeBlanc began having [...]

26 01, 2018

Another tragic death as 8 year-old boy contracts NF after bike fall

2018-01-26T11:04:16+00:00 January 26th, 2018|Awareness, Latest News|

An eight-year-old boy has died just days after contracting flesh-eating bacteria despite four major operations that involved amputating almost every limb. Liam Flanagan, a second-grader who loved cycling and animals, crashed his bike as he rode down his family's hill in Spring Creek, Oregon, on Saturday January 13.  The handlebar sliced through his jeans, and [...]

22 12, 2017

This Pen Can Save A Life!

2017-12-22T10:14:52+00:00 December 22nd, 2017|Awareness|

Our Educational Training USB/pens are distributed to assist in the educational learning for medical staff who are likely to assist in the treatment and survival of necrotising fasciitis. From early diagnosis to surgery this tool will be an extremely useful tool to pass on to your colleagues. We want to save lives and avoid debridement [...]

21 12, 2017

INFECT Meeting in Stockholm

2017-12-21T11:01:21+00:00 December 21st, 2017|Awareness, Event|

I was honoured to represent the Lee Spark Foundation at the 5th annual INFECT meeting in Stockholm at the beginning of December. It was fantastic to meet and work with such an excellent group of people, all working towards the same goal - "to advance our understanding of the pathophysiological mechanisms, prognosis, and diagnosis of [...]

28 11, 2017

29th Nov – 1st Dec is the 5th Annual INFECT Meeting

2017-11-28T10:36:47+00:00 November 28th, 2017|Latest News|

This week sees the 5th annual INFECT meeting, where our co-ordinator Wayne will be attending on behalf of The Lee Spark Foundation. As someone that has been through necrotising fasciitis, Wayne is aware of the need for medical research and will be able to add valuable insight to this project. What is INFECT? The overall [...]

24 11, 2017

Looking For Work After NF? Try This . .

2017-11-24T09:26:47+00:00 November 24th, 2017|Latest News|

We all know that getting back to work after a serious illness such as NF can be daunting. So many questions . . . How will I cope with full-time work and stress? Do I tell them about my illness? What if I need support? So, we've been on the look-out for good employers with [...]

10 11, 2017

NF causes new mum to become quadruple amputee

2018-01-26T10:57:13+00:00 November 10th, 2017|Awareness, Latest News|

When new mother Lindsey Hubley returned to the hospital with severe stomach pains a few days after giving birth, she was told it was just constipation and sent home. Hours later, though, the 33-year-old Canadian was rushed into emergency surgery and eventually diagnosed with necrotizing fasciitis—also known as flesh-eating bacteria. Hubley was suffering from septic [...]

3 11, 2017

Working with INFECT

2017-11-03T22:13:08+00:00 November 3rd, 2017|Latest News|

We are proud to be a partner of INFECT. This EU project aims at applying a systems medicine approach to elucidate the complex host and pathogen signatures that dictate severe bacterial soft tissue infections. INFECT aims to substantially contribute to the systems understanding of the pathophysiology of highly lethal destructive soft tissue infections, i.e. necrotizing [...]

31 10, 2017


2017-10-31T12:46:49+00:00 October 31st, 2017|Awareness, Fundraising|

A huge thank you and well done to Tim Ogdon, who has raised £1456.25 for our charity! Tim showed superhuman strength by completing 3 half-marathons this year in memory of his brother Jonathan, who tragically took his life after his battle with NF. Another terrible reminder of why we must continue to raise awareness and [...]

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