Awareness

/Awareness
21 12, 2017

INFECT Meeting in Stockholm

2017-12-21T11:01:21+00:00 December 21st, 2017|Awareness, Event|

I was honoured to represent the Lee Spark Foundation at the 5th annual INFECT meeting in Stockholm at the beginning of December. It was fantastic to meet and work with such an excellent group of people, all working towards the same goal - "to advance our understanding of the pathophysiological mechanisms, prognosis, and diagnosis of [...]

10 11, 2017

NF causes new mum to become quadruple amputee

2018-01-26T10:57:13+00:00 November 10th, 2017|Awareness, Latest News|

When new mother Lindsey Hubley returned to the hospital with severe stomach pains a few days after giving birth, she was told it was just constipation and sent home. Hours later, though, the 33-year-old Canadian was rushed into emergency surgery and eventually diagnosed with necrotizing fasciitis—also known as flesh-eating bacteria. Hubley was suffering from septic [...]

31 10, 2017

Fundraising!

2017-10-31T12:46:49+00:00 October 31st, 2017|Awareness, Fundraising|

A huge thank you and well done to Tim Ogdon, who has raised £1456.25 for our charity! Tim showed superhuman strength by completing 3 half-marathons this year in memory of his brother Jonathan, who tragically took his life after his battle with NF. Another terrible reminder of why we must continue to raise awareness and [...]

14 10, 2017

Science Daily discuss how 2 Group A Strep Genes link to NF

2017-10-14T12:02:14+00:00 October 14th, 2017|Awareness|

Group A Streptococcus bacteria cause a variety of illnesses that range from mild nuisances like strep throat to life-threatening conditions including pneumonia, toxic shock syndrome and the flesh-eating disease formally known as necrotizing fasciitis. The life-threatening infections occur when the bacteria spread underneath the surface of the skin or throat and invade the underlying soft [...]

3 10, 2016

3rd Oct 16….Just Quite Unbelievable !!

2016-10-05T12:58:28+00:00 October 3rd, 2016|Awareness, Event, Latest News|

Jayne...well this is a fantastic short story. Jayne developed necrostising fasciitis in January 2015 and suffered significant tissue loss. She stayed in hospital for three months rebuilding her strength again after having surgery many times. While she was in hospital her mother sadly passed away from Cancer. Quite unbelievable how anyone can survive both these [...]

10 03, 2015

Bright & Breezy

2015-03-10T14:20:30+00:00 March 10th, 2015|Awareness|

Just love this weather...fills me up with lots of excitement and even more to do's. Been sorting ..adding and documenting on this glorious day. What you might ask ? Well were having a WW2 theme Charity Ball this year in Blackpool..illuminations will be on which will make all guests even more excited. 17th October 2015 [...]

18 02, 2015

2015-02-18T10:39:24+00:00 February 18th, 2015|Awareness|

Infection Prevention & Control Conference Looking forward to giving my first presentation of 2015 (17th March) at Bethel Conference Centre West Bromwich. Titled “I can save a life” telling my story of losing my son Lee Spark and informing all delegates of the need for early intervention of NF…saving a fortune on NHS funds and saving lives [...]

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