Yearly Archives: 2017

21 12, 2017

INFECT Meeting in Stockholm

2017-12-21T11:01:21+01:00 December 21st, 2017|Awareness, Event|

I was honoured to represent the Lee Spark Foundation at the 5th annual INFECT meeting in Stockholm at the beginning of December. It was fantastic to meet and work with such an excellent group of people, all working towards the same goal - "to advance our understanding of the pathophysiological mechanisms, prognosis, and diagnosis of [...]

28 11, 2017

29th Nov – 1st Dec is the 5th Annual INFECT Meeting

2019-07-15T12:55:26+01:00 November 28th, 2017|Awareness|

This week sees the 5th annual INFECT meeting, where our co-ordinator Wayne will be attending on behalf of The Lee Spark Foundation. As someone that has been through necrotising fasciitis, Wayne is aware of the need for medical research and will be able to add valuable insight to this project. What is INFECT? The overall [...]

24 11, 2017

Looking For Work After NF? Try This . .

2019-07-15T12:55:17+01:00 November 24th, 2017|Awareness|

We all know that getting back to work after a serious illness such as NF can be daunting. So many questions . . . How will I cope with full-time work and stress? Do I tell them about my illness? What if I need support? So, we've been on the look-out for good employers with [...]

10 11, 2017

NF causes new mum to become quadruple amputee

2019-07-15T12:55:10+01:00 November 10th, 2017|Awareness|

When new mother Lindsey Hubley returned to the hospital with severe stomach pains a few days after giving birth, she was told it was just constipation and sent home. Hours later, though, the 33-year-old Canadian was rushed into emergency surgery and eventually diagnosed with necrotizing fasciitis—also known as flesh-eating bacteria. Hubley was suffering from septic [...]

3 11, 2017

Working with INFECT

2019-07-15T12:54:59+01:00 November 3rd, 2017|Awareness|

We are proud to be a partner of INFECT. This EU project aims at applying a systems medicine approach to elucidate the complex host and pathogen signatures that dictate severe bacterial soft tissue infections. INFECT aims to substantially contribute to the systems understanding of the pathophysiology of highly lethal destructive soft tissue infections, i.e. necrotizing [...]

31 10, 2017


2017-10-31T12:46:49+01:00 October 31st, 2017|Awareness, Fundraising|

A huge thank you and well done to Tim Ogdon, who has raised £1456.25 for our charity! Tim showed superhuman strength by completing 3 half-marathons this year in memory of his brother Jonathan, who tragically took his life after his battle with NF. Another terrible reminder of why we must continue to raise awareness and [...]

14 10, 2017

Science Daily discuss how 2 Group A Strep Genes link to NF

2017-10-14T12:02:14+01:00 October 14th, 2017|Awareness|

Group A Streptococcus bacteria cause a variety of illnesses that range from mild nuisances like strep throat to life-threatening conditions including pneumonia, toxic shock syndrome and the flesh-eating disease formally known as necrotizing fasciitis. The life-threatening infections occur when the bacteria spread underneath the surface of the skin or throat and invade the underlying soft [...]

14 10, 2017

Aimee Copeland speaking on NF at US event

2019-07-15T12:54:50+01:00 October 14th, 2017|Awareness|

Aimee Copeland, a young woman who lost her hands, a leg and a foot in a fight with flesh-eating bacteria, will be the keynote speaker for this year’s Power of the Purse Luncheon for United Way. The event will be held Nov. 2 from 11:30 a.m. to 1 p.m. at the St. Luke Ministry Center. [...]

9 10, 2017

Remembering Lee Spark . . .

2017-10-06T21:33:24+01:00 October 9th, 2017|Event|

18 years ago today my family and I lost our son, brother, nephew, cousin and uncle .. Stephen Lee Spark. We still struggle to believe how a tooth abscess could have developed so quickly into necrotising fasciitis. Though we will never forget his death we feel proud that the Lee Spark NF Foundation was born [...]

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