Chris Felton – Ambassador
Chris became an Ambassador and advocate of The Lee Spark NF Foundation as a result of his wife Becky contracting Necrotising Fasciitis in February 2013, his world had been turned upside down as he did not know what NF was, and his wife was in a serious critical condition with sepsis following NF. Chris spoke with his Councillor who passed our charity details to him.
He contacted us and spoke to Doreen, Founder of the charity who had lost her son Lee Spark 14 years ago. “Just speaking to Doreen was a huge help to me”.
When Chris’s wife started to recover and still in contact with The Lee Spark NF Foundation he looked in more detail into their work, he was amazed and wanted to help. Chris felt that he would be an excellent candidate for this role, he had experienced NF first hand, has excellent communication skills and extreme determination in wanting to ensure awareness and education of Necrotising Fasciitis will continue in order to save lives.
Chris distributes the charities literature, gives excellent presentations and has set his first challenge which is the National 3 Peaks in September 2014. Himself and his team will be not only competing in this event but will be stopping along route to leave leaflets in GP surgeries, Health Centre’s and hospitals to educate them of this devastating infection and details of his fundraising page. To make this event possible Chris has organised a family fun day a football tournament with many more ideas to follow.
Elaine McCulloch – Trustee/Ambassador
I became involved in The Lee Spark Foundation after contracting Necrotising Fasciitis after a emergency c-section on 14th April 2005. I spent many months in hospital including ICU, HDU and underwent 6 debridement operations and a long 22 month recovery after being left with a 18 inch hip to hip open wound.
Looking for information, help and support I found this wonderful charity and the assistance of Doreen Marsden with any question or worry answered with a warm friendly voice. I found the web page extremely informative and realised the need to raise more awareness, but hI wanted to become an Ambassador to spread the word regarding Necrotising Fasciitis and the need for quick diagnosis, effective treatment and rehabilitation from this horrendous disease. I feel given the opportunity within my living area of Scotland I could make a huge difference by sharing my story and what The Lee Spark Foundation stands for, working together in partnership we potentially could save lives.
Teri O’Brien – Ambassador
In 2009, the day after Thanksgiving I was diagnosed with Necrotizing Fasciitis. My life changed forever, for both positive and negative. How can it be a positive? I found my voice in the journey.
Prior to the illness, I lived my life in the background, being a champion for others, but not for me. That kind of existence leaves one vulnerable to many knocks by life. An incident while I was in hospital was a catalyst for me. I said no, that will not happen again. This gave me strength.
Eventually after my horrific experience I was transferred to a nursing home. It was obvious that the staff there had no experience of treating a patient with NF and there was a dire need for education.
On the internet, I researched and found The Lee Spark NF Foundation. Once my request to join was approved, I found there was a treasure. People who had been devastated by NF were eager to share their journey with others. We gave one another tools to cope, listened to the fears, helped with the sorrows. We have laughed, cried, been angered by lack of education . This community of survivors, these warriors have become deeply important to me.
My hope as an ambassador for The Lee Spark NF Foundation is to give a voice to the patient through my experience, and the experiences of those I have bonded with in my involvement with the foundation.
Doctors and other health professionals have the technical knowledge to cut away the infection, but the fear and comfort of the patient is sometimes lost along the way. I would like to educate the professionals on what it is the person with NF experiences.
Robert Wilkie – Trustee
After being introduced to the Lee Spark NF foundation by its Scottish ambassador I was able to discover much about the condition Necrotizing fasciitis than I ever knew before; most importantly I discovered I wasn’t alone in my continuing battle with the effects of this dreadful infection.
It is I believe extremely important to raise awareness of Necrotizing fasciitis. I am a great believer In the saying together we can make a difference and that is what the foundation is doing.
Sally Bolton – Trustee
I’m a married mother of two and a nana to my best boy. I had nf 11 years ago almost to the day
I was miss diagnosed for an entire week prior to my debridement operation. I want to ensure I do all I can to raise awareness of this awful illness
I want to assist the nhs to become pioneers of reducing the amount of deaths and become leaders in this field
Lucy Louise Dove – Trustee
My name is Lucy and in 2013 my one year old son, Frankie developed Group A strep associated necrotising fasciitis. When the infection was diagnosed Frankie was given a very small chance of survival. He had tissue and muscle debrided from 80% of his back, left flank and left thigh.
Frankie survived and has extensive skin grafting. We live in the north east of England and attend the great north childrens hospital regularly as Frankie will need operations as he grows because his skin grafts do not grow with him.
It has been 5 years since we first heard the words “necrotising fasciitis”. An infection we had no idea exsisted let alone happened to healthy children. My mission is to work as part of The Lee Spark foundation to raise awareness of this infection.
I particularily aim to educate the medical professions and students on the fact that this does happen to children. I also am here to help support any parents who may find themselves part of the NF family. Having a child who has been struck by NF is incredibly difficult because not only are you trying your hardest to care for and support your child but understanding what has happened and looking to the future can also be incredibly difficult.
I am here 24 hours a day 7 days a week should anyone need to speak about NF or want advice and support. You cannot chose which card you are dealt in this life but you can chose what to do with them and I fully intend on raising awareness of NF, saving lives and improving the after care of those who have been affected