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19 11, 2019

Robin’s amazing fundraising continues!

2019-11-19T09:15:59+00:00 November 19th, 2019|Awareness, Fundraising|

Robin's amazing fundraising continues! One of our incredible survivors, Robin Grant (a 5 year survivor of NF) set himself an impressive target this year. He wanted to raise money for us here at The Lee Spark NF  Foundation by doing at least 2 10k runs and a half marathon. Robin explains "I set myself a [...]

12 11, 2019

Florida woman hospitalised by necrotizing fasciitis

2019-11-12T09:22:40+00:00 November 12th, 2019|Latest News|

Florida resident Kelli Brown Whitehead was recently hospitalised and diagnosed with necrotizing fasciitis. Whitehead’s family members suspect but have not confirmed that Whitehead’s illness is related to wading in the Gulf of Mexico. On Monday, Nov. 4 Whitehead’s family gathered around her at Blake Medical Center for what they feared might be one of the [...]

4 11, 2019

Woman left in coma after cat scratch turns into NF

2019-11-04T10:09:53+00:00 November 4th, 2019|Awareness, Latest News|

Woman, 65, left in coma after her ‘spiteful’ Siamese cat scratched her. A grandmother had to spend over six weeks in hospital due to a scratch from her pet cat. Shirley Hair, 65, almost died when she developed sepsis, septic shock, organ failure, pneumonia and the flesh-eating bug Necrotizing fasciitis. The grandmother-of-five didn’t connect her [...]

31 10, 2019

Group A Streptococcus Focus Meeting

2019-10-31T16:54:12+00:00 October 31st, 2019|Awareness, Event|

It was absolutely fabulous to be part of the Group A Streptococcus Focus Meeting on 29/30th October, held at London’s School of Hygiene and Tropical Medicine . It was an honour to be asked to participate and contribute to some of the already excellent work being undertaken by the team. We all benefited from working [...]

18 10, 2019

Remembering Lee Spark on his birthday

2019-10-18T11:23:53+00:00 October 18th, 2019|Awareness, Charity|

Remembering my dear son on his birthday today. So sadly lost to this horrific disease. But also celebrating the success of our Charity in supporting so many families worldwide. RIP Stephen Lee Spark 18-10-1975 to 06-10-1999 Love always, Mum. Dee Founder/The Lee Spark NF Foundation. Reg Charity: 1088094

14 10, 2019

Mum almost killed by necrotizing fasciitis after C-section

2019-10-15T09:31:21+00:00 October 14th, 2019|Awareness, Latest News|

A mum has told of her C-section horror after she was nearly killed by a flesh eating infection (necrotizing fasciitis) that smelled "like dead bodies". Stricken Claire Gurney, 37, says an excruciating “black mass” enveloped her stomach just two days after she gave birth to her new baby boy last month. Mum-of-four Claire, from Kettering, [...]

9 10, 2019

Need a respite holiday? Let us help!

2019-10-09T09:30:53+00:00 October 9th, 2019|Charity, Event, Latest News|

The Lee Spark NF Foundation would like to invite applications from survivors, bereaved or carers of NF Worldwide to have a wonderful one week respite holiday for two people staying at Los Giles, Almeria, Spain. This property is so cute and is 100+ years old. https://www.facebook.com/thegrapevinesbnb. May 2020 The applicant should email us on [email protected] [...]

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