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27 03, 2020

Coronavirus advice from The Lee Spark NF Foundation

2020-03-27T10:37:45+01:00 March 27th, 2020|Awareness, Latest News|

In these uncertain times, The Lee Spark NF Foundation has obtained the following expert advice from Dr Tom Parks and Professor Shiranee Sriskandan on coronavirus for survivors of necrotizing fasciitis and their families: “Overall, there is no reason for survivors of NF or their families to be more concerned about coronavirus (COVID-19) than anyone else. However, as for the rest [...]

19 03, 2020

After 12 surgeries, 14-month-old boy is still fighting flesh-eating bacteria

2020-03-19T08:44:54+01:00 March 19th, 2020|Awareness, Latest News|

After 12 surgeries, 14-month-old Virginia boy still fighting flesh-eating bacteria. 14-month-old Camden Burnett was just like any other one-year-old up until two weeks ago. His mothers, Miranda and Chrissy Robertson, took him to Roanoke Memorial Hospital where he flatlined, or didn't have a heartbeat or brain waves, for four-and-a-half minutes. Camden was then airlifted to UVA [...]

12 03, 2020

Coronavirus outbreak – taking care of yourself

2020-03-12T10:32:36+01:00 March 12th, 2020|Awareness, Latest News|

While there is plenty of official advice coming from the government; we just wanted to remind you to take care of yourself during the Coronavirus outbreak. Unfortunately we all have a low immune system at times. Having necrotizing fasciiitis and ongoing health problems mean we are quite vulnerable to other viruses. The Coronavirus is now [...]

13 02, 2020

Father of three in critical condition after developing Group A Strep

2020-02-13T14:57:06+01:00 February 13th, 2020|Awareness, Latest News|

A California father of three is in critical condition after developing two life-threatening illnesses while travelling overseas. On Jan. 18, Jonathan Watson was away on business in Europe when he “fell seriously ill.” Following his trip, Watson was admitted to Saddleback Hospital near his southern California home where he was diagnosed with Influenza B and [...]

3 02, 2020

Janine’s NF story – overcoming the odds

2020-02-03T10:21:41+01:00 February 3rd, 2020|Awareness, Latest News|

Janine’s overcoming the odds, beating NF. Well-known local woman Janine Howard will feature in tonight’s edition of the popular BBCNI documentary series, True North. ‘Saving Face’ follows the story of 35-year-old Janine and her preparations for her marriage to fiancé Matthew Light in October. Janine was just two years old when she was diagnosed with [...]

22 01, 2020

Kylei Parker’s mum shares her NF story

2020-01-22T08:54:12+01:00 January 22nd, 2020|Awareness, Latest News|

Kylei Parker's mum wants other people to learn the symptoms of necrotizing fasciitis, so they can stop the infection before it's too late. Countless families head to beaches along the East Coast this time of year for a little rest and relaxation. But one mom wants other parents to know that there's a hidden danger [...]

17 01, 2020

Student contracts flesh-eating disease after mosquito bite in Cambodia

2020-01-17T10:18:46+01:00 January 17th, 2020|Awareness, Latest News|

A British student nearly died from a flesh-eating bug after a single mosquito bite while on holiday in Cambodia. Donna Cox, 22, spent five weeks in hospital after contracting necrotizing fasciitis, a bacterial infection that attacks the body's soft tissue. Doctors told her they could be forced to amputate her leg after she developed sepsis [...]

14 01, 2020

Can you make us your Charity of the Year?

2020-01-14T09:12:41+01:00 January 14th, 2020|Charity, Latest News|

Can you make us your Charity of the Year? Bit of a plea, this one. We're looking for any of our survivors, or family and friends, to see whether they could nominate us as their workplace Charity of the  Year? Previously, we've raised awareness on a large scale plus fundraising events (raffles/auctions/quiz nights) and also [...]

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